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UK Inflammatory Bowel Disease (IBD) audit: round 3 (2010-2012) Data description file-Paediatric organisational data-IBD audit 2010-2012

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Sitename SHA How many IBD paediatric IBD patients does your service manage? Is this figure an estimate or from a local database? Does the IBD service have a named clinical lead? Are there at least 0.5 WTE paedaitric gastro or IBD nurse specialists in the IBD team? Are there at least 0.5 WTE paediatric dieticians allocated to gastroenterology? Is there a dedicated gastroenterology ward on site? If there is a gastroenterology ward, how manys beds are there per toilet? Is there a hospital multidisciplinary nutrition team? Does the IBD service provide written information for paediatric patients with IBD and/or their carers on who to contact in the event of a relapse? Can relapsing IBD patients expect to be seen for specialist review within 7 days of referral? Are regular, timetabled IBD team meetings held to discuss paediatric IBD patients? Are joint or parallel gastoenterology/colorectal surgery clinics held? Are there guidelines for the management of acute severe colitis? Is a written care plan available for IBD patients and/or their carers? Is there a defined protocol in place between the IBD service and GP's for shared outpatient management?
Name of site Name of Strategic Health Board How many IBD paediatric IBD patients does your service manage? Is this figure an estimate or from a local database? Does the IBD service have a named clinical lead? Are there at least 0.5 WTE paedaitric gastro or IBD nurse specialists in the IBD team? Are there at least 0.5 WTE paediatric dieticians allocated to gastroenterology? Is there a dedicated gastroenterology ward on site? If there is a gastroenterology ward, how manys beds are there per toilet? Is there a hospital multidisciplinary nutrition team? Does the IBD service provide written information for paediatric patients with IBD and/or their carers on who to contact in the event of a relapse? Can relapsing IBD patients expect to be seen for specialist review within 7 days of referral? Are regular, timetabled IBD team meetings held to discuss paediatric IBD patients? Are joint or parallel gastoenterology/colorectal surgery clinics held? Are there guidelines for the management of acute severe colitis? Is a written care plan available for IBD patients and/or their carers? Is there a defined protocol in place between the IBD service and GP's for shared outpatient management?
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