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UK Inflammatory Bowel Disease (IBD) audit: round 3 (2010-2012) Paediatric organisational audit data-IBD audit 2010-2012

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site name sha How many peadiatric IBD patients does your IBD service manage? Is this number an esimate or taken from a database? Does the IBD service have a named clinical lead? Are there at least 0.5 WTE paediatric gastro or IBD nurse specialists in the IBD team? Are there at least 0.5 WTE paediatric dieticians allocated to gastroenterology? Is there a dedicated paediatric gastroenterology ward on site? If there is a dedicated paediatric gastroentereology ward, how many beds per toilet are there? Is there a hospital multidisciplinary nutrition team? Does the IBD service provide written information for paedaitric pateints with IBD and/or their carers on who to contact in the event of a relapse? Can relapsing patients expect to be seen for specialist review within 7 days of referral? Are regular, timetabled IBD team meetings held to discuss paediatric IBD patients? Are joint or parallel gastronenterology / surgery clinics held? Are there guidelines for the management of acute severe colitis? Is a written care plan available for IBD patients and / or their carers? Is there a defined protocol in place between the IBD service and GP's for shared outpatient management?
Addenbrooke's Hospital (Paediatric Gastro unit) East of England 150 Estimate Yes Yes Yes No Yes Yes Yes Yes No No Yes No
Alder Hey Children's Hospital North West 282 Database Yes Yes Yes Yes 7 No Yes Yes Yes Yes Yes Yes Yes
Barts and The London Children’s Hospital London 144 Database Yes Yes Yes Yes 4 Yes Yes Yes Yes Yes Yes No No
Birmingham Children’s Hospital West Midlands 280 Database No Yes Yes No Yes Yes Yes Yes No Yes Yes Yes